Reports of experiences

Sports for the disabled: Finn-Kristian Spies takes 1st place

Landgraaf. The 14-year-old young man from Würgendorf excels at “European Para Snow Sport Youth Circuits” in slalom and wins.

sz – At the invitation of the International Paralympic Committees the (IPC), approximately 50 disabled adolescents from five European countries met in the ski hall of Landgraaf in the Netherlands (IPC) .
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About self-confidence

Antonietta M. is the mother of an affected child. Her son is meanwhile a young man, independent, successful and stands on his own feet. Looking back, she tells other parents in a short letter what, from her point of view, is important in caring for an affected child. This letter can help raise spirits.
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Sending radiographs by email

Nowadays, you usually receive the results of an imaging procedure not only as hardcopies but also in digital form on CD. How can these images by mailed with the least possible loss in quality?
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Radiographs with needle-based detectors

Most hospitals and radiology institutes work with standard detectors. In order to image finest structures of a growing bone, we had to start looking for needle-based detectors
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Interview with BR Bayern2 Radio

"Five to ten children are born in Germany without a calf bone every year. A shin bone is there – but the calf bone is missing. The afflicted legs are shorter and thinner, the children cannot learn how to walk. In America, usually the shorter leg of the children is amputated – in Germany, the fixator is favoured and the ability of the bone to grow. Even if it takes a long time, is hard on everyone involved and is also very expensive. But to stand on both your own feet is different than standing on one artificial foot, says Katja, who had surgery 13 times since she was born 13 years ago – and she is getting closer and closer to her goal “To be able to stand in sand on both of my feet”.
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The Ili book

What do you have to know before and after getting an Ili? What do I have to take with me to the hospital? Can I walk with an Ili? What is allowed and what is not? These and many other questions are answered in our Ili book
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Hi, my name is Henrietta, and I am 10 years old.

I was born with a complex deformity of my left leg. It is called PFFD and fibular aplasia. I just call it my small leg. It does not grow at the same rate as my big leg, and it also grow crookedf
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Preparing for  Ili surgery

Our daughter suffers from fibular hypoplasia with a clubfoot problem and got her first Ili for leg lengthening at the age of 5. We got ready for this surgery
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"Pimp my Ili"

We used transparent PVC tubing from the hardware store on our daughter’s Ili and have successfully fixed some sharp edges
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Cruciate ligament  reconstruction

After a very good consultation by Dr Nader and his team, I had decided in favour of cruciate ligament reconstruction. The fear before the surgery
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Adjust the Ili equally! But how equal is equal?

When our daughter got her first Ili, we were told several times how important it is to turn the screws absolutely equally. Otherwise, the bone could get bent.
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Leg lengthening - a (radiographically) illustrated story

Our daughter (5 years old) suffers from fibular hypoplasia and therefore, one leg is too short. When the difference in length of the two legs was about 7 cm, we decided in favour of leg lengthening with an external fixator.
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My cruciate ligament surgery

My name is Svenja, I am 12 years old and live in Koblenz. Like so many of you, I spend several weeks each year at the hospital in Vogtareuth. My left leg has fibular aplasia.
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