Contact us

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Write to us, and we will get back to you as soon as possible.

kontakt@standbein-ev.com




Membership

Become a member of STANDBEIN e.V.!

Knowing how other people cope with hemimelia can be comforting. Use the opportunity to share your knowledge and personal experience with others in order to help them. Or become a sponsoring member and help us with a donation.

You have to be at least 12 years old to become a member.
The membership application form can be found here or contact us at our postal address. Membership dues are EUR 30.00 per year. In order to keep administrative costs as low as possible, we offer the option to pay automatically (via direct debit authorization). The corresponding form can be downloaded here.

Bylaws

Our partners

Member of the umbrella association "ACHSE" – Allianz chronisch seltener Erkrankungen (Alliance for rare chronic diseases)

Cooperation with the "Nathan" association

Cooperation with "Praxis Scheffler, Gutke-Spaleck – Bremen"

 

Imprint

Standbein e.V.
European Association for PFFD, Fibula-und Tibiadefect
Oberneulander Landstr 134c
28355 Bremen, Germany

Registered in the register of associations of the Bremen district court: VR 7144
Tax number: 71-608/12553 Tax Office Bremen-Mitte

Authorized representatives:
1st Chair: Dr. Annette Gutke
2nd Chair: Dr. Sean Nader

Mailing address:
Postfach 34 70 12
28339 Bremen, Germany

Telephone: + 49 (421) 33 62 99 98
Fax: + 49 (421) 24 35 411

Email: standbein-ev@web.de
Internet: http://www.standbein-ev.com

Association account

Standbein e.V.
Account number 9345264
VRBank Rosenheim-Chiemsee eG

IBAN DE95711600000009345264
BIC GENO DEF1 VRR
Donation account

Standbein e.V.
Account number 109345264
VRBank Rosenheim-Chiemsee eG

IBAN DE42711600000109345264
BIC GENO DEF1 VRR

Data privacy

The operators of this website take the protection of your personal data very seriously. We treat your personal information confidentially and in accordance with the relevant statutory data protection regulations and this data privacy statement.

The use of our website is generally possible without providing personal data. Insofar as personal data is collected (e.g. your name, address or email address), this is always done on a voluntary basis wherever possible. This data is not made available to third parties without your express consent.

Please note that data transmission via the Internet (e.g. email communications) may not be completely secure. It is not possible to fully protect data from access by third parties.

Data privacy statement for the use of Google Analytics

This website uses the features provided by the web analytics service Google Analytics. This service is offered by Google Inc. 1600 Amphitheatre Parkway Mountain View, CA 94043, USA. Google Analytics uses so-called cookies, which are text files that are stored on your computer to help analyze how you use the website. The information about your use of this website generated by the cookie is usually transmitted to a Google server in the USA and stored there.

However, if IP anonymization is activated on this website, Google will truncate your IP address beforehand within Member States of the European Union or other contracting states of the Treaty on the European Economic Area. Only in exceptional cases will the full IP address be transmitted to a Google server in the USA and abbreviated there. On behalf of the operator of this website, Google will use this information to evaluate your use of the website, to produce reports concerning website activity for the website operator and to produce additional services associated with the use of the Internet and the website. The IP address transmitted by your browser within the framework of Google Analytics will not be combined with other data held by Google.

You may refuse the use of cookies by selecting the appropriate settings on your browser software; please note, however, that if you do so you may not be able to use the full functionality of the website. Furthermore, you can prevent Google's collection and use of the data generated by the cookie and related to your use of the website (including your IP address) by downloading and installing the browser plug-in available at the following link: https://tools.google.com/dlpage/gaoptout?hl=en

Information, deletion, blocking

You may request, at any time and free of charge, information about your stored personal data, its origin and recipients as well as the purpose of the data processing. You are also entitled to request that this data is corrected, blocked or deleted. For further questions and questions concerning personal data, please feel free to contact us under the address published in the imprint.

Server log files

The provider of these pages automatically collects and stores information in so-called server log files which your browser automatically transmits to us. These include:

  • Browser type/browser version
  • Used operating system
  • Referrer URL
  • Host name of the accessing computer
  • Time of server request

This data cannot be linked to a specific person and will not be combined with other data sources. We reserve the right to subsequently check this data if there are concrete indications of illegal use.

Cookies

Our Internet pages use so-called cookies in several places. Cookies do not damage your computer in any way and do not contain any viruses. They assist us in making our online presence more user-friendly, more effective and safer. Cookies are small text files that are placed on your computer and stored by your web browser.

Most of the cookies used by us are so-called session cookies. They are automatically deleted at the end of your visit. Other cookies are stored on your end device until you delete them. These cookies allow us to recognize your browser when you visit the website again.

You can set your browser to notify you when you receive a cookie and only accept cookies on a case-by-case basis, to refuse cookies in certain cases or in general, and to automatically delete cookies when you close your browser. However, deactivating cookies may restrict the functionality of this website.

Objection to receiving promotional emails

The use of the contact data published in the imprint for sending unsolicited advertisements and information materials is hereby expressly excluded. The operators of these pages expressly reserve the right to take legal action in the event that unrequested advertising material is sent, for example via spam emails.

Legal disclaimer

Responsible for the content of this website in accordance with Section 55 of the German Interstate Broadcasting Treaty [Rundfunkstaatsvertrag, RStV] and Section 5 of the German Telemedia Act [Telemediengesetz, TMG]:

Standbein e.V.
European Association for PFFD, Fibula-und Tibiadefect
Oberneulander Landstr 134c
28355 Bremen, Germany

We do not assume any liability for the correctness, completeness and topicality of the contents. Liability claims made against the operator of this website, which relate to material or immaterial damages caused by the use or non-use of the information presented or through the use of inaccurate and incomplete information, are expressly excluded. Any use of the provided information takes place at the user's own risk.

The website is protected by copyright. The duplication, processing, publication or dissemination of contents or parts thereof is only permitted with the written consent of the website operator. Links to subpages are not permitted.

All trademarks and registered trademarks that are referred to within this website are the property of the respective owner.

Operators of external websites which are linked from our website are exclusively responsible for their content. The operator of this website distances itself from any content offered on those websites. This applies in particular to contents the dissemination of which is prohibited according to German and foreign law, and if aiding and abetting the dissemination of such contents constitutes a prosecutable offense. The author has no influence whatsoever on the current and future design and contents of the linked websites. The operator of the linked site is solely responsible for any illegal, inaccurate or incomplete content, especially in cases where damage has been caused through use or non-use of the information available on its website, and not the party who merely provided the link to the publication in question.

All offers are subject to change and non-binding. The operator of the website expressly reserves the right to modify, add or remove parts of the website or the entire website temporarily or permanently without prior notice.

This legal disclaimer is to be regarded as part of the Internet publication which you were referred from. Should parts or individual formulations within this text not, no longer or not fully comply with applicable law, this will not affect the contents and validity of the remainder of this document.

This website is made available on a server in Germany.